My dearest MJ,
It was so wonderful having breakfast the other morning celebrating daddy’s birthday! Though the service was not good, we all seemed to be enjoying our food. While taking a forkful of my omelette I glanced over to see you licking… your…toe! You were also smiling as you did it! After immediately saying to you “MJ what are you doing? Stop doing that,” you stopped and then continued on eating as if nothing had happened! After our 20 seconds of being horrified, we all ended up laughing about the whole thing…But I can’t help wondering why you did it? We have never seen you do that before! Were you deliberately trying to be silly, was your toe itching? I wish you could tell me. What a way to celebrate your dad’s birthday! Anyhow son, I hope you never, ever, ever,ever,ever, ever, ever, ever, ever, ever, ever do that again!
With All My Love,
He actually wrote this one during the week and taped it on the wall so we could see it. He took it a step further this time and wrote “no grownups allowed!” These notes really keep us laughing. I wonder what he’ll write next!
Mj’s IEP meeting is a week and a half away. It’s so funny how anxious I get when I see that notification letter in his school folder. On the contrary, the hubby is always calm about these things. He is blessed in that way. This is the 10th IEP meeting that we’ve had for MJ and that anxious feeling does Not go away for me. Though I read this book plenty of times, I’ll be reading it again from cover to cover so that I am fully prepared for the meeting! Prayers are welcomed and needed!
This morning we woke up to this note. I’m totally getting a kick out of the fact that he wrote “love, MJ.” 😊😊😊
I had “the talk” with my daughter. No not that talk! I spoke to her about how to explain autism to her friends. I began by showing her a short video about autism-What’s Up With Nick. She has seen it before but I wanted her to hear/see how the girl in the video explained it. She is a visual learner so I knew it would help. We went over a few basic responses and she came up with her own statement which basically says that, “his brain works differently so he communicates differently, plays differently, and he is really smart!” I couldn’t argue with that 😊. I told her that if her friends have more questions that she can’t answer, then she could always ask for help. I’m sure this won’t be the last “talk” that we have about this. I’m so pleased to be having this discussion with her.
There were many people that didn’t understand what we were going through in the early years with MJ. I wish I realized back then, that they were not worth my time.
So!…Now that my daughter is 9 going on 19, she likes to talk with a few friends on the phone. The other day I heard her trying to explain autism to one of her friends. Apparently, she let one of her friends talk to MJ on the phone. After their brief conversation, her friend asked her a question about him. I am not sure what it was but usually it’s something like, “why does he talk like that?” My daughter struggled for about 40 seconds before finally giving me the phone. She tried to put the words together to explain autism, but she just couldn’t do it. I was actually impressed with how she started off trying to talk about it with her friend…”his brain works differently” she said. I spoke to her friend and gave her the “kid friendly” version of autism. At that moment I realized that we need to sit down with her and and have another conversation about it. She does need to know how to respond to her friends when they ask questions about MJ and she definitely needs to know how to explain what autism is. We will be having that talk really soon. We have to make sure that she knows how to answer those basic questions in a way that her friends will understand.