Month: March 2016

The Journey Continues…

~ NickyB. ~ 10 Comments

This is the last re-post of how this autism journey started for my family. Again, I want to thank everyone that follows this blog and reads my posts. It means the world to me. This is my one year blog anniversary. I look forward to many more.

NickysdayWithAutism

Is there a Doctor in the House?

After the school’s initial diagnosis I knew I had to somehow find a pediatrician that could actually medically diagnosis and see him on a regular basis.  I sat at my computer, said a prayer and began to again google “developmental pediatricians in Atlanta”.  I came across an article about a Dr. Rubin that had an “autism clinic” that was run at a local hospital once a month!  I couldn’t believe my eyes.  I immediately called the “clinic” and asked if the information was correct.  The nurse on the end of the phone explained that they would take my insurance and that I should make an appointment right away for the next autism clinic…and that I did!  I must admit that they really didn’t prepare me for how long I would have to wait before we would be called in to see the Doctor. …

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The Journey Begins

~ NickyB. ~ 14 Comments

This is a continuation of how it all began for us (Part 2).
It has been ONE YEAR since I started this blog! I can’t believe how fast the time has gone! I wanted to re-post a few of my very first posts so people new to my blog could know how it all began. I want to thank everyone that reads and follows my blog. My hope is that my blog educates and inspires all! My prayer is for kids and adults with autism to be accepted and loved.

NickysdayWithAutism

The next few days were honestly a blur.  I remember crying off and on, feeling sorry for myself, and wondering WHY this happened to me, my son, and my family.  “God has to heal him from this”.  My husband was trying to process this whole thing as much as I was.  I remember telling my family and trying to stay as upbeat and positive as I possibly could. “OK, that’s it, enough crying”…I need to do what I can to help this little boy.  I became a “google junkie”.  Some of the information was great and some was scary.  I chose to focus on the positive articles that I could find.  I went to the bookstore and purchased Jenny McCarthy’s book (Louder Than Words).  It was so refreshing to read a book from someone who was experiencing what I was experiencing.  In the last chapter of the book she…

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The Beginning…

~ NickyB. ~ 16 Comments

It has been ONE YEAR since I started this blog! I can’t believe how fast the time has gone! I wanted to re-post a few of my very first posts so people new to my blog could know how it all began. I want to thank everyone that reads and follows my blog. My hope is that my blog educates and inspires all! My prayer is for kids and adults with autism to be accepted and loved.

NickysdayWithAutism

About 6 months after getting married, my husband and I decided to have a baby.  Thankfully, it didn’t take long and we were soon pregnant.  Of course I purchased every baby book known to mankind and read and read and read, and then read some more!  The moment in my pregnancy that stands out to me is the day we found out the sex of our baby.  We found out we were having a boy! We were so excited but my husband was completely bonkers with this news!  He longed and hoped for a boy (he already had 2 daughters).  He called everyone and said “we have a penis, we have a penis”!  The next few months were plagued with more reading, fear of childbirth, heartburn, fear of childbirth, sleepless nights, fear of childbirth, decorating the baby’s room, and oh yeah did I say fear of childbirth! I secretly was…

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OMG, LOL!

~ NickyB. ~ 13 Comments

My dearest MJ,

It was so wonderful having breakfast the other morning celebrating daddy’s birthday! Though the service was not good, we all seemed to be enjoying our food.  While taking a forkful of my omelette I glanced over to see you licking… your…toe! You were also smiling as you did it! After immediately saying to you “MJ what are you doing? Stop doing that,” you stopped and then continued on eating as if nothing had happened!  After our 20 seconds of being horrified, we all ended up laughing about the whole thing…But I can’t help wondering why you did it? We have never seen you do that before! Were you deliberately trying to be silly, was your toe itching?  I wish you could tell me.  What a way to celebrate your dad’s birthday! Anyhow son, I hope you never, ever, ever,ever,ever, ever, ever, ever, ever, ever, ever do that again!

With All My Love,

Mommy

Here We Go Again😳

~ NickyB. ~ 29 Comments

Mj’s IEP meeting is a week and a half away.  It’s so funny how anxious I get when I see that notification letter in his school folder. On the contrary, the hubby is always calm about these things. He is blessed in that way. This is the 10th IEP meeting that we’ve had for MJ and that anxious feeling does Not go away for me.   Though I read this book plenty of times, I’ll be reading it again from cover to cover so that I am fully prepared for the meeting! Prayers are welcomed and needed!

xoxo

  

The Talk

~ NickyB. ~ 17 Comments

I had “the talk” with my daughter.  No not that talk! I spoke to her about how to explain autism to her friends.  I began by showing her a short video about autism-What’s Up With Nick. She has seen it before but I wanted her to hear/see how the girl in the video explained it.  She is a visual learner so I knew it would help.  We went over a few basic responses and she came up with her own statement which basically says that, “his brain works differently so he communicates differently, plays differently, and he is really smart!”   I couldn’t argue with that 😊. I told her that if her friends have more questions that she can’t answer, then she could always ask for help.  I’m sure this won’t be the last “talk” that we have about this.  I’m so pleased to be having this discussion with her.   

  

She Didn’t Quite Know What To Say

~ NickyB. ~ 28 Comments

So!…Now that my daughter is 9 going on 19, she likes to talk with a few friends on the phone.  The other day I heard her trying to explain autism to one of her friends.  Apparently, she let one of her friends talk to MJ on the phone.  After their brief conversation, her friend asked her a question about him.  I am not sure what it was but usually it’s something like, “why does he talk like that?”  My daughter struggled for about 40 seconds before finally giving me the phone.  She tried to put the words together to explain autism, but she just couldn’t do it.   I was actually impressed with how she started off trying to talk about it with her friend…”his brain works differently” she said. I spoke to her friend and gave her the “kid friendly” version of autism.  At that moment I realized that we need to sit down with her and and have another conversation about it.  She does need to know how to respond to her friends when they ask questions about MJ and she definitely needs to know how to explain what autism is. We will be having that talk really soon.  We have to make sure that she knows how to answer those basic questions in a way that her friends will understand.