This is the second time in a year that I have heard one child say this to another child. It happened right in front of me and I had to use everything within my mind, soul, and body to remain as adult and professional as I could without “going off” on the child.
After taking a long, deep breath I explained to her that the statement was ignorant, rude, and offensive. I explained how intelligent Autistics are and how they think and see the world differently. I encouraged her to do some research. Then I proceeded to show her my huge autism pin along with two autism bracelets that I was wearing proudly!
It made me extremely sad for the entire day. I kept thinking, “Where are they getting this information from? Of all of the things that could have been said, why was “autistic” chosen?” It showed me that WE STILL HAVE A LOT OF WORK TO DO! If we want our kids to truly be accepted, then kids and adults must be educated about autism. I also wondered, why did I hear it? Is this something God wanted me to hear for a reason?
Towards the end of the day, the child did apologize but it didn’t change the way that I felt and still feel. MJ does not deserve a world that thinks so little of him.
I know I can’t be the only one who gets nervous when they see the school phone number pop up on their cell phone! That’s exactly what happened this week. As soon as I saw the school phone number pop up, my mind went to gloom and doom lol! I automatically began thinking, “oh no what happened to my son or daughter?!” Fortunately, it was a call from the principal of the high school we were praying MJ would get into! He informed me that MJ received the school reassignment and that I needed to come in to register him as soon as possible! I was really impressed by the fact that the principal personally called me to let me know this information. I’ve done reassignments before but this is the first time that I received a personal phone call. Thrilled to hear the news, I registered MJ by the end of the week. It hasn’t really hit me yet, that he’ll soon be in 9th grade. It hasn’t even hit me that my daughter will be entering middle school! This upcoming school year is going to be a doozy. Anyway, I received a wonderful email from Marcus’s current speech teacher. We will be really sad to leave her..
Great news, that school has a great ESE program and Marcus will be with his friends. I know the SLP there and will recommend Marcus; although, I don’t think I am ready to see him leave, I love him, he is such a wonderful kid (you told me the day we met) and I will miss him greatly. I will go with them on a field trip to the new school, we will visit the classrooms and other areas, meet the teachers and get familiar with the school. You are also invited to go with us.
It was so nice to receive this email from her and hear how much she loves MJ.
It gave me some much needed peace about the future😊.
I recently received this alert saying that I have been blogging for 3 years! I honestly cannot believe that it’s already been that long. I remember how nervous I was to begin blogging. Where MJ is concerned, I tend to be a little bit more private than I normally would be. MJ was ending his 5th grade year and hadn’t even started middle school yet! Boy was I anxious!!! As the days and months go by I continue to write and read other blogs and learn so much from other special needs parents. The knowledge and support that I have received has been truly wonderful. I’m looking forward to many more years of blogging 😁.
I wanted to give you all a short video of MJ at Music Therapy 🎶. I love that he truly enjoys going and I never have to force him out of the house 😁. This children’s ability Center has been amazing!
MJs IEP meeting was just this past week! No matter how many of these I attend, It’s still very difficult to hear about all of your child’s “areas of need,” before they get to his progress. It is still difficult for us to sit and listen to it all. Earlier last month I received a draft of the IEP that I immediately took to work to have a friend look at for me. She is an ESE specialist and is familiar with what happens in high school. As I write this, I honestly cannot believe that MJ will be going to high school next year! It seems as though I was just writing the same thing about him going to middle school! I have the same emotions. I’m nervous, excited, scared, and at the same time hopeful! MJ did so well in middle school and I’m anticipating the same for high school. I had to fill out a school choice form for him to be able to attend the high school that we wanted. I still have to wait another month to find out if it’s approved. I know two other autism moms that have their children at the school and they both love the program and speak highly of the teachers so I’m really praying that we get that school. One concern for me during the IEP meeting was that they wanted to decrease his speech therapy from 90 minutes to 60 minutes. Excuseeeee me! I immediately asked why they wanted to do that and no one could answer me! His speech therapist wasn’t even at the meeting! She had a fill-in instead and this person had never seen MJ for a therapy session. I looked at everyone as though they had five heads and told them, “absolutely not!” I had to keep my composure to make sure that “Nicky from the 305” did not make an appearance! I told them to change it back to 90 minutes, as speech is one of the main things that we know he needs to work on. He still has much better receptive language than expressive language. I’m still baffled by that horrible suggestion. One positive take away was how much better his hand writing has gotten since entering middle school. The occupational therapist was able to show me something that he recently wrote. You can see it below. All in all, the meeting was productive. Once I get approval on the high school, we will all be visiting there to tour the school and meet the teachers. But for now I have to get my mind and spirit ready for the fact that it’shappening…I will soon have a high schooler.
My daughter’s birthday is coming up. This year she wanted to do something different so I mentioned Disney and of course she was totally excited about it! I immediately went online to try and find what weekend would have less crowds. My daughter’s birthday is Presidents Day weekend and I knew that would be a nightmare for MJ ( heck, for all of us)! After researching I found that February 8th-11th is a non peak weekend and therefore would work well for us. When we do visit Orlando, we only focus on one theme park. There is no park hopping over here. MJ would never be able to tolerate that. My daughter decided on Animal Kingdom this time. I was pleased because MJ loves animals and I knew he’d enjoy it too. We always pack the essentials: gold fish, Caprisun, apples, headphones, portable DVD player and his tablet. Im so relieved that he does well on road trips. He is relaxed and mostly looks out of the window while occasionally asking, “are we there yet?” When we first get to the hotel we settle in and then walk around and check out the resort. Then it’s time to eat! They always have his favorite (nuggets and fries). Next up is always the arcade. It’s so nice to see the kids playing together and not getting on each other’s nerves (yes Jesus)! The next day is our theme park day. I prepared MJ by showing him videos of Animal Kingdom with the attractions and rides. We also reviewed a map of the park and the hotel we’d be staying in. When we first got there we immediately went to guest services for their “disability access service” which allows MJ to go on attractions a little faster, in order to avoid meltdowns. After that it was time to explore the park! MJ was a bit hesitant when we got there. He walked slowly, with his head down, and looked aggravated. Hubby had to hang back with him for a few minutes while I went ahead with Morgan. She was thrilled with all there was to see and I could tell that it bothered her that MJ was less enthused (insert prayer here). It took about 30 minutes for him to ” warm up.” We had fun on Kilimanjaro’s Safari, and on rides in the Dinosaur area. The Festival of the Lion King show was great! Unfortunately MJ slept through the entire show which was really a bummer because I knew he’d enjoy that (One of his favorite TV shows right now is The Lion Guard). Six hours flew by and I could tell by the look on his face that it was time to go. We are always sure not to over do it with him. After Animal Kingdom we had dinner then the kids enjoyed the resort pool for the rest of the evening and the next day. We had a wonderful time and though this trip was really all about Morgan, we can never really go anywhere without planning for MJ.
The only picture of All of us together that we took:
During the last few months it has been increasingly difficult to get MJ to want to go to church. If I’m honest, it’s never been a completely smooth experience but lately he yells, and has a huge attitude about it. So I decided to have him stay with a family member while I went with my daughter. I just have to admit how awesome it was to not have to worry about MJ’s behavior (loud outbursts) while there! I was able to completely focus, participate and listen to the pastor!!! It was honestly one of the best Sundays I’d had in a while. This is not to say that I’ll stop trying with MJ, but I will definitely do this more often.