MJ is 15🎉!

We spent a wonderful weekend celebrating Mjs’s birthday as well as Mother’s Day! We started out by trying something different with him-We took him fishing! Most of the time, we don’t know how he is going to respond to certain activities so we were attentively watching him during the process. He ended up really enjoying it and I am so pleased that we now have another activity that he can be involved in. He also went to his favorite restaurant and we ended off his celebration at the beach, which is his favorite place to be 😁.

#Icantbelieveheis15

#mjdeservesit

#Godissogood

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#Growth

On the left my son is almost 15 years old. However, I still see him as the little boy on the right🤷🏽‍♀️. Yes, it’s unrealistic, but there’s something about my Scoompy that makes me want and need to protect him forever. I’m so grateful to God for every milestone he has reached and every obstacle he has overcome.  We were once told that he would never speak clearly and didn’t know if his writing would ever be legible.  MJ continues to learn and grow. And through the process, I continue to do the same.

#myboymyjoy

#Awareness&Acceptanceeverymonthoftheyear

1st High School IEP Meeting

Well we had MJ’s IEP meeting recently and it went “as expected.” They went over how he was doing on his current goals and added in some new ones for next school year. I was thrilled that I didn’t have to fight with them on his speech therapy. He will continue to have 90 minutes of speech therapy per week. However, I did agree that the occupational therapy was no longer needed. MJ has come such a long way with his hand writing and it is completely legible. What I found, was that the OT given at his high school was mainly to improve a child’s handwriting and nothing more. It was funny to see their facial expressions when I immediately agreed that OT was not needed. They assumed that I was going to put up a fight about it. I did have to mention a situation to the ESE specialist in regards to another child taking MJ’s lunch. It was an issue that I was able to figure out after a few weeks of questioning MJ. To make a long story short, one of his classmates was asking him for his food every day and MJ was actually giving the child his food! The teacher and the aides had no idea that this was happening because they were off to the side assisting the kids that needed the most help. Once I made them aware that something was going on, they spoke to the child as well as everyone in the classroom to make sure that it wouldn’t happen again. Initially I was furious about the situation but right now I’m just thankful that I was able to figure it out. Lately, I’m being really selective with the battles I choose to fight. I know God’s got my back and MJ’s back, no matter what.

Meeting Coming Up

We are now in the second half of the school year. Though I’m still not completely happy with MJ’s teacher, he seems to like going to school and she actually has great teacher’s assistants in the room. There’s not as much homework anymore so it’s a little easier going at home. I recently received a letter regarding his upcoming IEP meeting. Now that he’s older, he’s invited to attend the meeting. I’m not sure how I feel about that yet. Needless to say, I already have a list of items that I will be discussing at his meeting. Until then, I am going to continue taking it one day at a time.

The Best Part of Thanksgiving Weekend

Hi!

I hope everyone had a wonderful Thanksgiving day! The best part of the weekend happened on Thanksgiving night. I went into MJ’s room to tell him goodnight. As I was leaving the room I heard him mumble something. I turned around and asked him to repeat what he said. He looked right at me and said, “Mommy, I’m thankful for my family.” I went to bed just beaming ❤️.

#HappyThanksgiving2018

#IlovemyFamily❤️

Life Skills Class to the Rescue

Mj has been taking a life skills class twice a week for the last 3 weeks or so.  We were called and offered the opportunity to have him in the program and we decided to take them up on the offer.  The coordinator for the class wanted my input on what skills I wanted MJ to work on.  I told them he needed extra help with brushing his teeth, washing his face, doing chores, and tying his shoelaces.

Every day that he goes to class, I get a report of the goals that MJ worked on for the day.  He is getting better and better with all of his goals.  Last week they told me that he tied his shoelaces by himself.  I looked at them in disbelief (he has tied them before years ago, but could never do it again) and asked that they record him tying his laces or I would not believe them! Well, this past week I was pleasantly surprised when I picked him up and they showed me a 39 second video of MJ independently tying his shoelaces!  It almost brought tears to my eyes.  I couldn’t believe that he did it in less than a minute.

This week, I am planning on untying every shoe he has, just to be sure that he continues to tie them at home as well!  I am so grateful to the Children’s Ability Center and all that they are doing for MJ.  He is getting older and I know that some resources may not be available to him in the future.  We don’t have any time to waste.  He is currently in 3 different activities and this will continue through the end of December.  Yes, we are tired, but we will be happily tired if it means MJ being the best that he can be.

Parent/Teacher Conference

We had MJ’s conference a few weeks ago.  At the onset, there was a lot of tension in the air.  I immediately asked how MJ was doing in class. I wanted to be sure that he was doing everything he was supposed to be doing while at school.  She said that Mj was doing well in academics and behavior.  I then began discussing the various issues that we were having…completed work not being graded, no communication from her, homework not labeled/no instructions given, etc.  The most important issue we addressed was her lack of curriculum.  She told me of various websites that she utilizes for resources in her classroom as well as a textbook that she uses for math.  All the while I  was thinking, “why didn’t she tell me this at Open House (sigh).”  I then turned my attention to the ESE specialist and again voiced my frustration about the lack of resources that are offered to our special needs kiddos ( I can talk about this issues for hours because it disgusts me so much).  She agreed with my concerns and said that she would “look into it.”  I haven’t heard from her since our conference but I will be following up with her in a few weeks.  Since the conference, I will admit that things have gotten better.  A routine is now established and the homework is no longer overwhelming.  Here’s to hoping and praying that the rest of the school year continues to get better!

#Mjdeservesmore

#educationisnotequalforall

#Iwillbeheard