Mj is currently attending another session of YMCA Swim Buddies! It’s something that we both look forward to during the year. As I watched him swim with his “buddy” yesterday, I couldn’t help but think of the years when he was totally afraid of the water and would do nothing but scream at the very top of his lungs while he was in the pool. I think of the months that we paid for private lessons with someone who was supposed to be trained and certified to teach special needs children, but who obviously wasn’t! The private lessons actually made everything worse!
Now, Mj swims like a fish and it’s his favorite thing to do 😊. Seeing him in the water never gets old. I just literally stare at him and smile. To all of the other special needs parents out there…Don’t. Give. Up!
MJ just had his first airplane ride since he was a baby! Needless to say, I had been a little worried about how it would go for a few weeks now. To prepare him, I used a calendar to let him see exactly when we would be leaving and returning. I also used several social stories about flying on an airplane. I then found a great YouTube video that showed a step-by-step process of what happens while you are at the airport. He was very reluctant to watch the video, but I made sure he watched it anyhow. I downloaded a few of his favorite shows onto his tablet, made sure he had his headphones, and had a few of his favorite snacks as well. The TSA check in was a little frustrating but that was pretty normal. He waited patiently to board, and once on the flight, he was excited to see that Delta had plenty of entertainment options for him. He looked at what his sister was doing and plugged in his headphones and decided to browse through all of the movies that he could watch. He was so excited when he saw the Charlie Brown movie, the Teen Titans movie, and Finding Nemo. He happily chose Finding Nemo and started watching the movie even before the flight took off! This helped to distract him from the noise of the plane after it took off. While in the air he complained a few times, but I am happy to report that he was calm and fell asleep during the flight!
This was the first time that my family was on an airplane together. As I sat on the plane and looked at them, I had to hold back tears. This is something that so many families take for granted and it is something that I have wanted to do for years, but I knew that MJ just was not ready. This experience will now open up other opportunities for us to travel together as a family by plane. I’m. So Grateful.
We spent a wonderful weekend celebrating Mjs’s birthday as well as Mother’s Day! We started out by trying something different with him-We took him fishing! Most of the time, we don’t know how he is going to respond to certain activities so we were attentively watching him during the process. He ended up really enjoying it and I am so pleased that we now have another activity that he can be involved in. He also went to his favorite restaurant and we ended off his celebration at the beach, which is his favorite place to be 😁.
Well we had MJ’s IEP meeting recently and it went “as expected.” They went over how he was doing on his current goals and added in some new ones for next school year. I was thrilled that I didn’t have to fight with them on his speech therapy. He will continue to have 90 minutes of speech therapy per week. However, I did agree that the occupational therapy was no longer needed. MJ has come such a long way with his hand writing and it is completely legible. What I found, was that the OT given at his high school was mainly to improve a child’s handwriting and nothing more. It was funny to see their facial expressions when I immediately agreed that OT was not needed. They assumed that I was going to put up a fight about it. I did have to mention a situation to the ESE specialist in regards to another child taking MJ’s lunch. It was an issue that I was able to figure out after a few weeks of questioning MJ. To make a long story short, one of his classmates was asking him for his food every day and MJ was actually giving the child his food! The teacher and the aides had no idea that this was happening because they were off to the side assisting the kids that needed the most help. Once I made them aware that something was going on, they spoke to the child as well as everyone in the classroom to make sure that it wouldn’t happen again. Initially I was furious about the situation but right now I’m just thankful that I was able to figure it out. Lately, I’m being really selective with the battles I choose to fight. I know God’s got my back and MJ’s back, no matter what.
We are now in the second half of the school year. Though I’m still not completely happy with MJ’s teacher, he seems to like going to school and she actually has great teacher’s assistants in the room. There’s not as much homework anymore so it’s a little easier going at home. I recently received a letter regarding his upcoming IEP meeting. Now that he’s older, he’s invited to attend the meeting. I’m not sure how I feel about that yet. Needless to say, I already have a list of items that I will be discussing at his meeting. Until then, I am going to continue taking it one day at a time.
I hope everyone had a wonderful Thanksgiving day! The best part of the weekend happened on Thanksgiving night. I went into MJ’s room to tell him goodnight. As I was leaving the room I heard him mumble something. I turned around and asked him to repeat what he said. He looked right at me and said, “Mommy, I’m thankful for my family.” I went to bed just beaming ❤️.
It all started with MJ’s first high school Open House. I was eager to hear all of the information that the teacher would give us about educating our special needs kiddos. Well, I was extremely disappointed! She greeted us as we entered the classroom and sat down. She then played a video of the administrative team introducing themselves to the parents. After the video, she gave us a sheet that detailed what subject was taught on a specific day (the school operates on a block schedule). She then said, “do you have any questions for me?” I could not believe that she did not tell us anything about what the kids would learn in her class, nothing about projects, nothing about the process at lunchtime, nothing about reading, nothing about math, nothing about social studies, nothing about science, nothing about their electives. SHE TOLD US NOTHING! Well, when she asked the question, I looked around at the other parents to see if anyone was going to begin asking questions…No one did, so I took out my journal and began asking what I believe to be basic questions, that I assumed would have been automatically answered during her open house presentation. What stands out the most is when I asked about what reading and math curriculum she used. Her response was, “I don’t have a curriculum.” I immediately repeated what she said with a scowl on my face. How can she not have a curriculum?! Where is she getting the information to teach my kid?! From that moment I knew that I would have to set up a parent/teacher conference with her to really find out what “curriculum” she uses. I don’t want MJ to be “work-sheeted” to death! I don’t have time for him to be completing meaningless worksheets day after day and not truly learning anything. The conference will be in the next week and I am praying that there is a good outcome to it.